It is really difficult between finding the balance of living life and being safe. I am still at a point, where I choose a bruise over not participating! That being said, I have given in to using my walker inside. Now that we are on our own again in the apartment, I need to choose safety so Travis can go to work without worrying about me. I've also begun receiving home care with a personal support worker through the "VHA" program. This is very difficult for me as I like to be independent, but what I'm telling myself is that this will allow me to keep my independence. Travis doesn't believe me but I find it hard asking (telling) people what to do. So this is going to take some getting used to!
I had my 3 month ALS Clinic visit and my breathing, swallowing and talking is still within the normal ranges. The doctors said that I am doing really well. They had many patients this year who were diagnosed and died within 2015. My heart goes out to them and their families and I will do my best to appreciate life while enduring this difficult disease.
Still feeling the love and never-ending support from awesome people I'm connected to. I have to share with you an email I received from my Sorority Sisters of Kappa Kappa Gamma at McGill University in Montreal;
My name is Alex and I am the current philanthropy chair at Delta Delta. I wanted to reach out and let you know that the women here at Delta Delta are still thinking about you!
We want you to know that you are always in our hearts and we are here to support you in any way that we can. Being a Kappa, to us, means always being there for your sisters, no matter what.
In that light, I am writing to you to let you know that our Fall Philanthropy event this year was again organized in support of the ALS Society of Quebec. We held a dance-a-thon where we had teams performing routines, a dance lesson, and dance battles throughout the afternoon. It was a lot of fun and a very successful event in both fundraising for the society and for raising awareness of the terrible disease that effects too many people.
In the end we raised just over $1200 for the society and we wanted to let you know this as you inspire our chapter every day and this event was created with you very much in mind. We wish you all the best and if you have anything you'd like me to read out to the chapter, we always love hearing from our wonderful alumni!
L & L
How Awesome is that? Check out their photos below. I will never feel that I deserve this outpouring of support from so many people in my life, but I am sure going to savour every moment of it!
I know there is a lot of sadness in the world lately, but I will never stray from my belief that people are generally kind, loving and good. Many may be misguided, suffering and lost, but generosity, compassion and love, are what will win over hatred and violence in this world.