Year 3 of my diagnosis and as Sheila Lee so poignantly described it, I am "crushing" my prognosis!
I am very proud of my part in the advocacy work I do in the fight against ALS. Recently I was invited by ALS Canada to participate in an ALS Government Caucus. Along with Tammy Moore the CEO of ALS Canada and Dr. David Taylor the Director of Research, MP's and Senators from all parties came together to form an ALS Caucus to keep issues at the forefront and moving forward. Travis and I shared our story to demonstrate the need for the Canadian Government to get involved and support funding for the urgent need for ALS research.
We were heartened by the interest and commitment of the individuals who attended and feel certain that they will continue to meet until action can be made. It was overwhelming to meet in Centre Block of Parliament Hill where Government Employees work so hard on behalf of all Canadians. We could feel the history of Canada as we discussed the impact of ALS and felt that this is where we can make a difference.
It was incredibly special as my cousin Chelsea arrived after our meeting to say hello. She has just moved from B.C. with her boyfriend Eric to work on Parliament Hill, so proud of her!
I have posted some new publications on the Media page if you are interested.
I have also participated in advocacy as I have volunteered to support and speak at HealthPartners Government of Canada Workplace Charitable Campaign. Since 1988, HealthPartners has been the link between workplace donors and many of the country’s most respected health charities. They have raised $135 million for research and support services to deal with some of the most devastating chronic diseases and serious illnesses faced by Canadians — and in the process given organizations the tools and information to build more engaged, healthier workplaces.
We are becoming so political! Travis with the former Prime Minister of Canada Jean Chrétien.
Carol Jean Skinner (née Sharman)