I'm still here - somehow I am one of the lucky ones (depending on your definition of luck) did you know that only 20% of people living with ALS live past 5 years after diagnosis, and only 10% live past 10 years? I am in my 7th year living with ALS. You have a 1 in 300 lifetime risk of developing ALS. The reason some people call it a "rare disease" (it's not) is because people living with ALS die so quickly so there is not a high population living with the disease at one time.
Check out the Quick Facts below to learn more about ALS.
On ALS/MND Global Awareness day, June 21, we are participating in ALS Canada's Virtual Walk to End ALS. Of course this is a difficult year for all of us, and charities for the most vulnerable are particularly struggling, so if you have anything to give, it would be forever appreciated! Please click on the button below if you would like to sponsor me, I will be rolling for you on the day!