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Walk to End ALS

4/27/2019

The Living Loving Laughing Walkers are back at it!

We are excited to participate in the 2019 Ottawa Walk to End ALS on Saturday, June 8th.

We would love to have you join us, sponsor us or wish us a great day!

Your continued support means the world to not only my friends and family but our beloved ALS Community as a whole. Living with ALS can be frightful and lonely, but events like these lift our spirits and our hope.

Sponsor Me

Join My Team

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National Volunteer Week

4/12/2019

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After Carol was diagnosed with #ALS, she began sharing her journey on her personal blog.

It started as a personal journal and has turned into a resource for others living with ALS where people go to learn “helpful hints in managing ALS,” while also facilitating connection-building.

Thank you for your strength and dedication to bringing about #ALS awareness and for fostering a virtual ALS community. Your impact as an ALS Canada ambassador has been tremendous and we truly enjoy supporting your efforts.

Your ability to support others living with #ALS to feel inspired and understood during their journeys is a beautiful thing. #NVW2019

Learn how you can make a difference by getting involved: https://bit.ly/2VDpi8D

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Motion 105: DENIED

4/6/2019

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On March 19th, 2019 Finance Minister Bill Morneau tabled the Canadian federal budget.

Sadly, the promise of Motion 105 was again NOT KEPT. Exactly $0 was allocated towards ALS. When M-105 was passed unanimously in 2017 I was eager for the 2018 federal budget. I was shocked and appalled when there were no targeted funds for ALS research, I mean, they promised (yes, I know how naive that sounds). My spirits were lifted after attending a few ALS caucus meetings in parliament, yes there are ministers that do seem to care.

My friend Eddy & I thought we could not stand by and let them do this to us again so we developed the MP letter writing campaign in which over 2300 of you sent letters to our government. Also, despite M-105 stating that our government would "develop and launch a comprehensive strategy to assist with the eradication of ALS at the earliest opportunity", they did not, so ALS Canada did with CAPTURE ALS. We did everything in our power to encourage our government to keep their promise and they disappointed.

I can't say that I was surprised, but I did have a smidgeon of hope. Instead I was left dejected and feeling like a failure. It is hard enough to keep going with this unfathomable disease, and false hope from politicians who pretend to care feels like another weight I cannot bear.

To hell with them. As Winston Churchill said, "Never, never, never give up". My dad survived the Battle of Britain, so he is living proof! We are going to find a way to do this ourselves.

My dad serves as a great example as he approached his bank and because of that CIBC will be sponsoring this years Ottawa Walk to End ALS. As the GM Anthony stated, "because of Mr. Sharman’s passion for this cause and his ability to connect us with the right people in your organization that CIBC will be moving forward with a sponsorship for the local Ottawa Walk".

The federal budget did include an investment in the Brain Canada Foundation, which has the ability to allocate funds towards CAPTURE ALS, though there are no guarantees. ALS Canada has had a partnership with them in the past so perhaps reaching out to them will promote ALS research.

Other fundraising opportunities include Bloomex Florist, Orangetheory Fitness, Smart & Biggar's Trivia Night and of course the upcoming walk season!

To end on a heartwarming, tear inducing note, my beautiful cousin Chelsea and her fiancé Eric, are also donating to ALS Canada as part of their wedding!

We are so very pleased to welcome another new corporate sponsor to the #2k19 #OttawaWalkToEndALS : CIBC Ottawa!

CIBC believes in offering banking that fits your life, and it is their business to help clients, employees and shareholders achieve what is important to them. CIBC's ability to create value for all CIBC stakeholders is driven by a business culture that is based on common values of trust, teamwork and accountability.

To find out more about the different services offered by CIBC, visit: https://www.cibc.com/en/personal-banking.html or stop in to the local CIBC branch nearest you.

Please help me extend a big THANK YOU to CIBC Ottawa for their sponsorship and support!! #WalkToEndALS #ottcity #myottawa #sponsorship #communitypartner

We’re excited to announce that online florist Bloomex Canada has partnered with ALS Canada for their “Get and Give” campaign this year. When you sign up with Bloomex Canada using our special partner account, you’ll automatically get 15% off your purchases until the end of 2019. There’s more! Whether you’re buying flowers, gifts, gift baskets, or balloon bouquets, Bloomex Canada will then give 10% of your purchase to ALS Canada as a donation.

Read about this new partnership in a press release published by Bloomex Canada: https://bit.ly/2Cw1lIZ

It’s time to break a sweat with Augie’s Quest!

For a second year, members of Orangetheory Fitness studios from across Canada are sweating it out for ALS research during their national fundraising campaign. Augie’s Quest is taking place at your local Orangetheory Fitness studio between May 1 and 15. Members are challenged to push harder during their workouts to raise money in support of the ALS Canada Research Program - funding high-quality research with the most promise to slow down or even stop ALS.

In 2018, the ALS Canada Research Program was honoured to receive $250,000 from Orangetheory Fitness and this year, they have upped the ante and are aiming to raise an incredible $400,000!

For information on an Orangetheory Fitness studio near you, visit their website and get involved this year: https://bit.ly/2FRE1HT

In support of ALS Canada, and in gearing up for the Kichesippi Beer Workplace Runoff, #SmartandBiggar is hosting their 2nd annual Trivia Night at the Lieutenant's Pump on Elgin Street. Thursday, April 18, 2019 starting at 7:00pm.

Registration is now open at $10/person. To register as an individual participant or as a team (maximum 4 people), please contact Alexandra Wray via email at ARWray@smart-biggar.ca

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Trivia for ALS

4/2/2019

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Looking forward to Smart & Biggar's Trivia night with donations going to ALS Canada at the Lieutenant's Pump in Ottawa on April 18th.

Will you join us for some competition? If there are any questions on 80's bands, I will kill it!

Are you the 'trivia buff' in your group? If so - and even if not but you love good game night - this is an event you don't want to miss!!

In support of ALS Canada, and in gearing up for the Kichesippi Beer Workplace Runoff, #SmartandBiggar is hosting their 2nd annual Trivia Night at the Lieutenant's Pump on Elgin Street. Thursday, April 18, 2019 starting at 7:00pm.

Registration is now open at $10/person. To register as an individual participant or as a team (maximum 4 people), please contact Alexandra Wray via email at ARWray@smart-biggar.ca

Hope to see you all there!
#trivianight #fundraiser #runsmartgivebiggar #myottawa #ottcity#aFutureWithoutALS

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Walk to End ALS

National Volunteer Week

Motion 105: DENIED

Trivia for ALS

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