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VIRTUAL Walk to End ALS

5/9/2020

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Living Loving Laughing Walkers 2019
As many of you are probably aware, this year's Walk to End ALS in Ottawa scheduled for May 30th has been cancelled.  I'm very disappointed as we had a big group of Living Loving Laughing Walkers ready to join us!  Of course it is the right decision and we are not giving up.  All Walks across the province have been rescheduled as a VIRTUAL Walk for June 21 which is ALS/MND Global Awareness Day.

Although we can’t walk together physically, we can still stay connected and have fun with our teams. We are all in this together!

The Walk to End ALS is ALS Canada's main source of fundraising.  There is NO Government support and as you can imagine this is going to be a tough year for fundraising.  As a person living with ALS I cannot tell you how much Travis and I rely on the support of ALS Canada.  They have provided us with equipment, mental health support and most importantly HOPE through providing funding to the most promising research.  If you can help in any way, THANK YOU!  No effort or donation is too small.
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If you would like to donate to the 2020 Walk to End ALS please click on the "Donate" button below.  If you would like to join our Living Loving Laughing Walkers team and participate in fundraising, please click on the "Join Our Team" button below and you will be directed to our team page, where you click on the Join Our Team button on the page to register.

Shout out to Clementine Nuñez for being the first to Join our team and make a donation!
Donate
Join Our Team
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Clem has promised to walk for our team on June 21!
ALS DOESN'T STOP SO NEITHER WILL WE!
#WalktoEndALS

Virtual Walk

We know how important the Walk to End ALS is to people affected by ALS. It’s more than just a fundraiser – it builds community and connects people. We are committed to honouring this experience and creating an opportunity for the ALS community come together to show their support. It’s your Walk, your way! 

To support you in physical distancing, we have put together some fun activities and ideas to keep connected:
  • Chalk Your Walk: get outside and use sidewalk chalk to show your neighbours that you’re still doing the Walk to End ALS on June 21, 2020! 
  • Take a selfie: post a photo about why you walk and share it on your social media – don’t forget to tag us at @ALSCanada
  • Throw-back: share a photo of your favourite Walk memory- post on your front window for passersby or on social media and tag us @alscanada
  • Get Groovy: tune into our Walk to End ALS playlist on Spotify 
  • Coming soon! ALS Canada colouring pages: download Walk to End ALS colouring pages & stencils
  • Coming soon! DIY T-shirt: download stencils to decorate your own t-shirts and have fun with the whole family 
  • Car Parade: Invite your team to decorate their windows, make signs for the car, top up with decorations like balloons, streamers and do a car parade around town

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COVID-19 ROUND TABLE : IMPACT ON PALS & CALS

5/5/2020

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On Wednesday, April 22nd  the PALS & CALS Advisory Council (PCAC) of the International Alliance met for a roundtable discussion on the impacts of COVID-19 in our global ALS/MND community.  To listen to the webinar, click on the image below.
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Click on the image below for questions and answers from this roundtable.
COVID-19 IMPACT ON PALS & CALS
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International Symposium - 2020

5/1/2020

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Important information regarding this year’s International Symposium
  
As a result of the continuing global uncertainty caused by the Covid-19 pandemic, the MND Association has taken the very difficult decision to cancel this year’s International Symposium on ALS/MND. This follows detailed consultation with the International Alliance of ALS/MND Associations and our 2020 hosts
ALS Canada and ALS Quebec.
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We have considered many factors over recent weeks, including the potential for global travel, rules around gatherings and social distancing, and the financial implications of the various scenarios open to us. Of course, none of us can be sure what restrictions will be in place in December, when the Symposium was due to take place. It was that lack of certainty which became the overriding factor in our decision-making. By cancelling now, we have limited the financial risk to the MND Association at a time when, like many charities, we are facing a considerable fall in income.

We appreciate how disappointing this news will be to all of those involved in supporting and attending both the Alliance meetings and the Symposium over recent years – we share your disappointment.

Our teams are now working hard to create alternative opportunities to exchange the latest exciting advances in research and clinical management and to ensure global collaboration continues. Our current focus is the creation of a Virtual Symposium later this year – we will bring you more details on that over the coming weeks.
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    Carol Jean Skinner (née Sharman)
    born October 19
    lives in Ottawa, Canada

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carol skinner  - rolyskinner@gmail.com
travis skinner - skinnertravis@gmail.com