"Life is too damn short. When you get an ALS diagnosis, you are told you only have 2–5 years at the most. Your clock is tickin’ and it’s tickin’ fast. What do you do? Because with ALS, the disease doesn’t care. It takes away mobility and functionality of your body. Sometimes it’s slow. Sometimes it’s fast. I’m going to die from ALS, but it’s not going to take away my life. It’s ALS Awareness Month. You’ve got 30 Days. Take a video, post your story, or spread the word. Do it for someone with ALS, someone you love, someone you lost or do it for you. This is it! Seize the Days."
Despite this, and though I do have days where I feel quite sorry for myself, I still have plenty to be grateful for. This is what I would like to try and focus on and share with you.
I am now able to get out of bed, though still quite weak and shaky. I'm taking things slowly and day by day trying to build my strength back up, although at this point I'm not quite sure if the lack of strength is due to infection or ALS.
Crazy story, I went to the emergency room due to my fever and I recognized the Doctor. It turns out that it was Dr. Lorne Wiesenfeld who was at Delta Upsilon at McGill with Keith. What a small world. I was a very lucky girl as he took such good care of me, comforted me, shared DU stories with me (I promised not to tell the nurses!) and followed up with me on a daily basis. Once again the Greek community comes through and if you ever wonder why people join fraternities or sororities, it is due to the lifetime bond, friendships, care and respect we have for each other and each other's families.
I am so proud of my team the "Living Loving Laughing Walkers" and all of our sponsors for this years Ottawa Walk for ALS. We raised $3,829! Special thanks to Craig & Donna who represented our team at the walk even though I was too sick to go! Also, special thanks to Brittany & Sean who donated the proceeds of their garage sale to the walk, so generous.