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Best Team Spirit!

10/27/2016

A huge thank you to Team Blue Skies for participating in their 4th Annual LiveLoveLaugh Walk for Carol! Not only did they raise an extraordinary $1450 towards finding a cure, but they were recognized by the ALS Chapter of Greater New York for BEST TEAM SPIRIT! Bravo!

Blue Skies

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Advocacy

10/10/2016

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Peace Tower

Selfie at the Library of Parliament

Year 3 of my diagnosis and as Sheila Lee so poignantly described it, I am "crushing" my prognosis!

I am very proud of my part in the advocacy work I do in the fight against ALS. Recently I was invited by ALS Canada to participate in an ALS Government Caucus. Along with Tammy Moore the CEO of ALS Canada and Dr. David Taylor the Director of Research, MP's and Senators from all parties came together to form an ALS Caucus to keep issues at the forefront and moving forward. Travis and I shared our story to demonstrate the need for the Canadian Government to get involved and support funding for the urgent need for ALS research.

We were heartened by the interest and commitment of the individuals who attended and feel certain that they will continue to meet until action can be made. It was overwhelming to meet in Centre Block of Parliament Hill where Government Employees work so hard on behalf of all Canadians. We could feel the history of Canada as we discussed the impact of ALS and felt that this is where we can make a difference.

It was incredibly special as my cousin Chelsea arrived after our meeting to say hello. She has just moved from B.C. with her boyfriend Eric to work on Parliament Hill, so proud of her!

I have posted some new publications on the Media page if you are interested.

Thank you to MP Francis Drouin for your support in launching the Goverment of Canada's ALS Caucus

Tammy, Chelsea, Travis, David

I have also participated in advocacy as I have volunteered to support and speak at HealthPartners Government of Canada Workplace Charitable Campaign. Since 1988, HealthPartners has been the link between workplace donors and many of the country’s most respected health charities. They have raised $135 million for research and support services to deal with some of the most devastating chronic diseases and serious illnesses faced by Canadians — and in the process given organizations the tools and information to build more engaged, healthier workplaces.

Speaking to Finance Canada with Lianne Johnston my ALS Canada Regional Manager

We are becoming so political! Travis with the former Prime Minister of Canada Jean Chrétien.

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Happy Birthday Don

10/4/2016

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Happy Birthday Donny, we think of you every day and miss you so much it hurts our hearts.

I found this video to share, not the best quality but I get to hear your voice and smile at your passion for U2!

Love you big brother...

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Best Team Spirit!

Advocacy

Happy Birthday Don

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