It was an honour to be a voice for the ALS community on Parliament Hill. We met with MPs to call on the government to make substantial changes to Canada's drug access process and to fund ALS research that will lead to effective treatments.
We advocated for the government to help Canadians access innovative therapies faster, and to be a partner in funding dedicated ALS research such as CAPTURE ALS.
We asked our MPs to join the ALS caucus as well as to write a letter to the Minister of Health in support of these asks.
This same week Parliament was shut down due to Covid-19. I implored our dignitaries to not forget about those of us who are dying from ALS when we get through this pandemic. If the Canadian government cares about the health and safety of Canadians why are those of us living with ALS left behind, without any government support for the ALS Society of Canada?
Check out all photos on the Gallery Page of my Blog.