August has been chock-a-block of doctor's visits, and I have a wonderful team to support me with the tools I need to continue with my passion which is TRAVEL (after Travis of course!).
Yesterday, Travis & I met with the Neurologist who diagnosed me in September. I had some more EMG tests where they stick needles in my muscles to measure how well and how fast the nerves can send electrical signals (ouch!). As predicted, the strength in my muscles has decreased, and he stated that my progression is average and maybe even a bit better than average. He thought I was doing well, as if you saw me seated, no one would even know that I have ALS. In terms of strength, my left side continues to be the weaker side, with considerable weakening of the left foot. I'm being fitted for my right foot orthosis (leg brace) which will help with stability and strength when walking. My feet are always cold due to poor circulation, but the doctor said that is nothing to worry about. I've also had my first visit with a psychologist to help deal with the mental stress of living with ALS. I am still independent and able to drive, though activities tire me out more easily so I need to build in rest times for my new lifestyle. Some days are better than others both mentally and physically. I met with the respirologist for my breathing tests and though my lung muscle function has decreased slightly, my lung capacity is 100%. My occupational therapist has been visiting to help me get fitted for a power wheelchair which will have a tilt function to help support my back.
August has been chock-a-block of doctor's visits, and I have a wonderful team to support me with the tools I need to continue with my passion which is TRAVEL (after Travis of course!).
2 Comments
Heather
8/17/2014 10:59:21 am
Heather the Optimist takes this all as good news; here to support your passions however I can xxoo
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Kate
8/19/2014 07:12:50 pm
Girls trip to Vegas! Go gals. xx
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AuthorCarol Jean Skinner (née Sharman) Archives
September 2020
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