Brittany, Carol & Katie Just finished the webinar with Dr. David Taylor. He was very optimistic about how research is advancing in ALS discoveries. He began by mentioning that there is advocation to the Federal Government in terms of extending compassionate care benefits from 6 to 35 weeks, as well as asking the Federal Government to match the ALS Walk donations for ALS research.
The main takeaways:
1) They have discovered that ALS is not just a motor neuron disease, it involves many cell types
2) ALS research is like a puzzle, each new discovered gene mutation helps us to understand more and about 70-80% of genes in familial ALS are known
3) There are more clinical trials than ever before and many in Canada
As for now, still not much I can do in terms of treatment, however, he did mention that a high carb diet has been shown to have positive outcomes!
It was heartwarming to see Heather & Kate as participants, I was absolutely touched and supported!
The main takeaways:
1) They have discovered that ALS is not just a motor neuron disease, it involves many cell types
2) ALS research is like a puzzle, each new discovered gene mutation helps us to understand more and about 70-80% of genes in familial ALS are known
3) There are more clinical trials than ever before and many in Canada
As for now, still not much I can do in terms of treatment, however, he did mention that a high carb diet has been shown to have positive outcomes!
It was heartwarming to see Heather & Kate as participants, I was absolutely touched and supported!
Shower Grab Bar My latest piece of equipment is this shower bar, which helps me get in and out of the shower.
The bed we have bought is absolutely incredible, the mattress is supportive and the head & foot lift features are so helpful and absolutely adds to my comfort level (Travis loves it!).
Unfortunately they delivered the wrong bed so this one does not have a massage feature, they will exchange it this Wednesday and my aching muscles can't wait!
Finally a beautiful Spring Day for our 3rd Open House, we had some people show up, but no offers as of yet.
Still seeing my wonderful friends and feeling supported by amazing colleagues.
I love my support network.
The bed we have bought is absolutely incredible, the mattress is supportive and the head & foot lift features are so helpful and absolutely adds to my comfort level (Travis loves it!).
Unfortunately they delivered the wrong bed so this one does not have a massage feature, they will exchange it this Wednesday and my aching muscles can't wait!
Finally a beautiful Spring Day for our 3rd Open House, we had some people show up, but no offers as of yet.
Still seeing my wonderful friends and feeling supported by amazing colleagues.
I love my support network.
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